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 Release 21.0, Jan 2008
 
Chapter : ch43. Medical Genetics Section : Guidelines and Indications for Genetic and Chromosome Analysis
  Indications to Screen for Subtelomeric Defects in a Patient with Mental Retardation

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Overview :

De Vries et al developed a simple checklist to determine if a patient with mental retardation should undergo specialized testing for subtelomeric defects.

 

Indications to screen a patient with mental retardation:

(1) family history of mental retardation

(2) intrauterine growth retardation

(3) poor growth (failure to thrive) or overgrowth in the postnatal period

(4) >= 2 facial dysmorphic features

(5) >= 1 nonfacial dysmorphic features and/or congenital anomalies

 

The presence of one or more of these factors may justify the expense of the specialized testing for a subtelomeric defect. Genomic microarray analysis may simplify testing and make it more cost-effective.

 

The above list is based on a more complete checklist (Table 2, page 148, De Vries et al):

 

Parameters for the checklist:

(1) family history

(2) prenatal onset of growth retardation

(3) postnatal growth abnormalities

(4) facial dysmorphic features (hypertelorism, nasal anomalies, ear anomalies, other)

(5) nonfacial dysmorphisms and congenital abnormalities

 

Parameter

Finding

Points

family history

none

0

 

compatible with Mendelian inheritance

1

 

not compatible with Mendelian inheritance

2

prenatal onset of growth retardation

none

0

 

present

2

postnatal grwowth abnormalities

none

0

 

1 point each for microcephaly, short stature, macrocephaly, tall stature

MIN(2, number present)

facial dysmoprhic features

none

0

 

1

0

 

2 or more

2

nonfacial dysmorphic features and/or congenital abnormalities

1 point each for: hand anomaly, heart anomaly, hypospadias, other

MIN(2, number present)

 

total checklist score =

= SUM(points for all 5 parameters(

 

Interpretation:

• minimum score: 0

• maximum score: 10

• A score >= 3 was 100% sensitive and 27% specific for a subtelomeric defect.

 

  References:

Battaglia A, Carey JC. Diagnostic evaluation of developmental delay/mental retardation: An overview. Am J Med Genetics. 2003; 117C: 3-14. (page 5).

De Vries BBA, White SM, et al. Clinical studies on submicroscopic subtelomeric rearrangements: A checklist. J Med Genetics. 2001; 38: 145-150 (page 148).

 

 

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